Directed Research

The aim of our directed research projects is to help answer specific questions that are not adequately addressed in the existing literature. As we identify these knowledge gaps, we frequently request and fund proposals from the research community to address these specific issues.

Our Library

Below you will find samples of our most recent acquisitions in Directed Research, grouped by resource type.

The Impact of Decision Aids about Prostate Cancer Screening for Men Accessing Healthcare in a Community Setting: DVD vs. Web

The overarching goal of this study is to compare the impact on knowledge and acceptability of a prostate screening decision aid delivered via either DVD or Web format. We have considerable experience and expertise in developing and comparing format-related differences in impact and uptake of patient education programs, with a particular interest in incorporating literacy levels into our research.…  Continue reading
Posted in Decision Aid Components, Directed Research | Tagged decision aids, prostate cancer screening, web-based Permalink

Evaluation of DVD and Internet Decision Aids for Hip and Knee Osteoarthritis: Focus on Health Literacy

This study will advance the evidence base regarding best methods for facilitating informed decisions among patients with knee and hip osteoarthritis (OA) by comparing DVD and Crossroads online formats of decision aids (DAs) for these conditions. …  Continue reading
Posted in Decision Aid Components, Directed Research | Tagged decision aids, health literacy, hip osteoarthritis, knee osteoarthritis Permalink

A Randomized Mixed-Methods Cross-Over Study to Compare the Performance of Traditional DVD and Web-Based Patient Decision Support

To date, few randomized trials have directly compared the same Decision Support Interventions (DESIs) delivered through different media. While earlier efforts focused principally on booklets and videos, more recently the majority of DESI development efforts have focused on creating interactive electronic tools that can be delivered through the internet. However, very little is known about how web-based DESIs perform in comparison to more traditional video DESIs, such as those developed and distributed by the Informed Medical Decisions Foundation.…  Continue reading
Posted in Decision Aid Components, Directed Research | Tagged decision support, DESis, PAMF, web-based Permalink

Using Multimedia Approaches to Communicate Probabilities in Patient Decision Aids for Low-Literacy Populations

The broad, long-term goal of this project is to determine the value of enhanced multimedia approaches to communicating probabilities in patient decision support tools when applied to patients with low health literacy/numeracy.…  Continue reading
Posted in Decision Aid Components, Directed Research, Literacy and Numeracy, Risk Communication | Tagged communicating risk, decision aids, health literacy Permalink

Personalized Cardiovascular Risk Information to Initiate and Maintain Health Behavior Changes

We propose an evaluation that will assess three important components of risk communication: 1) provide patients with personalized risk communication using the risk calculator developed by the Informed Medical Decisions Foundation and health information taken from the Living with Coronary Artery Disease program; 2) provide personalized tailored patient feedback to help initiate and maintain specific cardiovascular CVD-related behaviors (e.g., medication adherence, exercise, diet, smoking cessation) to reduce risks; and 3) evaluate how this feedback can be incorporated into clinical care by examining 3-month patient outcomes and provider responses to the risk information.…  Continue reading
Posted in Decision Aid Effectiveness, Directed Research, Literacy and Numeracy, Risk Communication | Tagged cardiovascular disease, communicating risk Permalink

Identifying Components of Decision Aid Interventions that Enable Informed Decision Making about Dialysis Modality

This research aims to assess the effectiveness of component parts within patient decision aids (pDAs) on patient’s informed decisions about dialysis modality.…  Continue reading
Posted in Decision Aid Components, Directed Research | Tagged chronic kidney disease, decision aids, shared decision making Permalink

How the Valence and Content of Narratives Influence Information Search

In the proposed research, we will explore how two dimensions of narratives influence impact on health care decisions: content and emotional valence. Across two studies, the proposed research will focus on the mechanisms through which narratives influence decision processes, a dimension which has been largely ignored in the literature.…  Continue reading
Posted in Decision Aid Components, Directed Research | Tagged decision aids, narratives Permalink

Examining the Relationship Between Decision Support Interventions and Outcome Measurements: Applying the IPDAS Instrument to the Results of the Cochrane Systematic Review of Patient Decision Aids

The International Patient Decision Aid Standards (IPDAS) Collaboration has led to the development of a quality checklist and, more recently, an instrument to assess the quality of decision support interventions. We recognize that further work is required to examine the relationships between International Patient Decision Aid Standards instrument (IPDASi) scores and the outcomes achieved in clinical trials.…  Continue reading
Posted in Decision Aid Effectiveness, Directed Research | Tagged Cochrane Review, decision aids, decision support, IPDAS, IPDASi Permalink

Developing Measures of Decision Quality

The field tests in the last year show that the items on the whole are performing as intended, and patients find the surveys acceptable and feasible. There is growing interest in the research community to use these instruments, and we have been exploring interest in clinical community to extend their use.…  Continue reading
Posted in Decision Quality, Directed Research, Patient Knowledge, Patient Preferences | Tagged breast cancer, colorectal cancer screening, decision quality instruments, depression, herniated disc, hip osteoarthritis, knee osteoarthritis, menopause, MGH Permalink

Testing Multimedia and Print Health Materials Across Literacy Levels

We propose two complementary investigations to address the effectiveness of optimally designed multimedia and print materials in different contexts. The first addresses knowledge dissemination for preventive services and disease self-management. The second explores best practices for conveying information about risks and benefits of treatment.…  Continue reading
Posted in Decision Aid Effectiveness, Directed Research, Literacy and Numeracy | Tagged decision aids, health literacy Permalink

Patient Use of Health Outcomes Calculators Based Upon the Results of Complex Longitudinal Clinical Trials to Enhance Decision Making: The Spine Patient

Initial plans for a new calculator were developed. Following, an expert panel reviewed the plans and provided detailed recommendations for the calculator design. Feedback was also solicited from clinicians, potential users in one-on-one sessions and a small focus group. …  Continue reading
Posted in Decision Aid Effectiveness, Directed Research, Patient Involvement, Risk Communication | Tagged outcomes calculator, shared decision making Permalink

Understanding Comparative Effectiveness Research: Would Observational Data Have Predicted Results Found in Randomized Controlled Trials of Coronary Revascularization?

Contemporary randomized controlled trials (RCT) of coronary revascularization have not found any survival advantage from aggressive intervention, while observational data suggest otherwise. We aim to compare outcomes predicted from observational data without strict exclusion criteria with results from patients who would have been eligible for RCTs.…  Continue reading
Posted in Directed Research, SDM Implementation | Tagged comparative effectiveness research, coronary revascularization Permalink

The National Survey of Medical Decisions (The DECISIONS Study)

The National Survey of Medical Decisions was designed to collect nationally representative data from adults age 40 and above on a variety of medical decisions from the patient perspective, using a random digit dial (RDD) telephone survey. …  Continue reading
Posted in Decision Quality, Directed Research, Patient Involvement, Patient Knowledge, Patient Preferences, SDM Implementation | Tagged DECISIONS Study, medical decisions Permalink

Pathways to Revascularization

Project seeks to assess utility of administrative claims data to characterize indication and urgency of revascularization procedures, and to assess care preceding, the geographic variation of, and the temporal trends of such procedures. Project also wants to assess care preceding a revascularization procedure (indication and urgency, and pathways to revascularization) and assess geographic variation and temporal trends with respect to the characteristics of revascularization procedures.…  Continue reading
Posted in Directed Research, Health Care Policy, SDM Implementation, Special Populations | Tagged CABG, cardiac revascularization, geographic variation, PCI Permalink

History of Decision-Making in Cardiac Revascularization

Research seeks to look at the relationship between disease models and therapeutic practice and examine the history of the recognition that CABG and, to a lesser extent, PCI could cause severe neuro-cognitive side effects.…  Continue reading
Posted in Directed Research, Patient Involvement | Tagged CABG, cardiac revascularization Permalink

Can a Customized Quantitative Informed Consent Document Improve Decision Quality and Be Integrated into the Care Process?

Project developed and tested a customized quantitative informed consent document IC, including risks, benefits and alternatives, for those considering CABG surgery or PCI.…  Continue reading
Posted in Decision Quality, Directed Research, Patient Involvement, Risk Communication | Tagged informed consent, patient-centered care Permalink

Shared Decision Making for People with Severe and Persistent Mental Illness

The proposed research will assess the decision making needs of people with SMI and their clinicians, and create a model decision aid that meets the local needs of clients and clinicians. This study will contribute to the development of interventions for persons with SMI by: 1) identifying decision support needs gaps; 2) identifying moderating variables of needs gaps; and 3) building and assessing the feasibility of decision aids to fill decision support needs gaps in this population.…  Continue reading
Posted in Directed Research, George Bennett Grants, Patient Involvement, SDM Implementation, Special Populations | Tagged decision aids, mental illness, shared decision making Permalink