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Patient Involvement
Patient involvement refers to the role the patient plays in the medical decision making process. Many factors come into play that affect how much influence the patient has in the decision making process, including how and when the patient is involved in the process and the desire of the patient to take an active role in their care.
Our Library
Below you will find samples of our most recent acquisitions in Patient Involvement, grouped by resource type.
Effects of Decision Ambiguity on Shared Medical Decision Making
September 30, 2011
To evaluate the impact of ambiguity on shared medical decision making using scenarios on future medicine and unconventional medicine. To develop and test a decision aid tool to help patients and physicians understand ambiguity and to encourage a shared medical decision making process that is applicable to ambiguous decisions that involve future medicine and unconventional medicine. … Continue reading
Overdiagnosis in Screening Mammography: Examination of Women's Attitudes and Responses to Information about Overdiagnosis
May 15, 2011
The overall purpose of this research is to contribute to improving communication with the community about screening mammography. The research involves developing and evaluating educational materials and strategies to meet the important ethical objective of providing balanced information about screening outcomes in order to support screening decisions.… Continue reading
Facilitating Shared Decision Making in Lynch Syndrome: Notification of Relatives of Hereditary
May 15, 2011
At the foundation of genetic counseling is shared decision making. During the decision to undergo genetic testing, familial implications of results and notification are often not discussed extensively due to time constraints.… Continue reading
How do Patients Decide about Angioplasty for Chronic Stable Angina? A Content Analysis of Patient-Physician Discussions
January 31, 2011
The objective of this study is to evaluate the content and character of PCI discussions between cardiologists and patients to determine how often recommended elements of informed decision making are included, to understand why many patients perceive a mortality benefit and to evaluate the effect of informed decision making on patients’ decisions. … Continue reading
Understanding the Experience of Early Stage Breast Cancer Diagnosis and Surgical Treatment among Jordanian Women
September 30, 2010
To understand the experience of being diagnosed with and undergoing surgical treatment for early stage breast cancer among Jordanian women. Study specific aims are to: 1) gain an understanding of women’s knowledge of breast cancer treatment and how their treatment awareness has been informed; 2) explore women’s awareness of their right to be informed and involved in their own medical care; 3) explore women’s preferences for involvement; and 4) identify the extent to which these women perceived that they had surgical treatment options.… Continue reading
Prostate Education Project ("PEP Talk"): Cutting through the Uncertainty of Prostate Cancer for Black Men Using Barbershop Outreach
January 31, 2010
The goal of this research is to provide pilot data aimed at a rigorous randomized clinical trial in assessing the effectiveness of barbershop-based health promotion in order to improve the quality of decisions made by AA men about PrCA screening. … Continue reading
Development and Feasibility Testing of a "Consumer Questions" Program to Increase Health Literacy and Empower Consumers to Participate in Decisions about their Health
January 31, 2010
To explore feasibility and implementation issues of a program to train consumers to use the consumer questions.… Continue reading
[FUSION] Investigating the Doctor-Patient-Family Triad to Gain An Understanding of Shared Decision Making
January 30, 2010
To improve understanding of this critical, yet neglected area of DM, the current project will elucidate the doctor-patient-family triadic relationship through an exploration of cancer consultations. It will expand the conceptual framework of the meaning and characteristics of shared decision making (SDM) to incorporate the doctor-patient-family triad. The newly developed conceptual framework will provide a basis for future theoretical and empirical research into triadic DM across a variety of medical and professional encounters. Thus, through its novel conceptual contribution, this project has the potential to transform the field of SDM.… Continue reading
Understanding the Information Processing of a Colorectal Cancer Screening Decision Aid Among Latino Patients with Limited English Proficiency
September 30, 2009
The objectives are: 1) to adapt existing key English-language IP measures for use in assessing how LEP Latino patients perceive and process information presented in a Spanish CRC screening decision aid (DA); and 2) to determine the relationship between key IP domains and the ability to state preferences regarding CRC screening, intentions to discuss with a clinician and screen for CRC.… Continue reading
A Mixed-Method Examination of Older Adults' Decision to Initiate Treatment for Depression
May 15, 2009
The main goal of the project was to determine how older adults weigh their experience with mental health treatment against provided outcome data about the effectiveness of psychotherapy among older adults.… Continue reading
The Unintended Consequences of Biomedical Advances: Social Inequalities in Health Behaviors Among Pregnant Women
May 15, 2009
This study combines an emerging approach in medical sociology that focuses on the importance of new health information and disease preventability with the bedrock of literature that describes the influence of social relationships on medical decision-making. … Continue reading
Does it Matter Whether Physicians' Recommendations are Given Early or Late in the Decision-Making Process?
May 15, 2009
The study aims to investigate what influence the time at which a physician's recommendation is given has on the patient's treatment decisions.… Continue reading
The Impact of Patient Activation on Preparation for Shared Decision Making Among Lower Socioeconomic and Minority Populations
January 31, 2009
This proposal initiates a larger research effort aimed at identifying methods to improve the ability of patients of lower socioeconomic position or minority status to share in decision making about health and health care, and to study the impact of shared decision making (SDM) on patient satisfaction and health outcomes.… Continue reading
The Effect of Testimonials in Patient Decision Aids: The Role of Numeracy, Literacy and Decision Making Style
January 31, 2009
Researchers want to understand what the effects of including testimonials and statistical information are, and how patient numeracy, literacy and decision making style interact with the type of information presented.… Continue reading
Increasing Self-Management in Chronic Illness: Using Videos and Coaching to Engage Patients
January 31, 2009
Specific aim 1: To leverage existing staff resources to increase the Informed Medical Decisions Foundation diabetes video distribution. Specific aim 2: To increase video viewing rates by patients. Specific aim 3: To assess physician & patient behavior subsequent to video viewing.… Continue reading
Impact of a Decision Aid on Patient Participation in Decision Making and Resource Use in Low Risk Chest Pain Patients: A Randomized Trial
January 31, 2009
Clinicians in the U.S. may miss two of every 100 patients with acute myocardial infarction or unstable angina (i.e., acute coronary syndromes, or ACS) presenting to the emergency department (ED) even after considering the history, physical examination, initial electrocardiogram and cardiac biomarkers (troponin levels). … Continue reading
Appealing to Males At-Risk for Testicular Cancer: Defining 'Control Identity' Typology and Modeling Perceptions of Testicular Self-Examination (TSE)
September 30, 2008
This study theoretically argued that an individual’s attitude toward cancer screening is a derivative of one’s “Control Identity;” specifically, how one views his control over health outcomes. A series of factor and cluster analyses in fact demonstrated that four distinct groupings of individuals as defined by the tenets of 'control identity' theory does in fact (at least) preliminarily exist. More testing is needed.… Continue reading
A Smoking Cessation Decision Aid for People with Serious Mental Illness
September 30, 2008
Because the Decision Support Website is newly designed, the aims of this grant are to pilot-test each module in order to evaluate usability, ease of use and comprehensibility.… Continue reading
A Decisional Needs Assessment Related to Implantable Cardioverter-Defibrillators for the Primary Prevention of Sudden Cardiac Death
May 15, 2008
The goal of this research is to determine the factors important to patients and physicians in making decisions about Implantable Cardioverter-Defibrillators (ICDs) for the primary prevention of sudden cardiac death.… Continue reading
Posted in Investigator-Initiated Research, Patient Involvement, Robert Derzon Grants
Tagged cardiac, ICDs
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Patient Participation in Decision Making in Medication Adherence in Osteoporosis
January 31, 2008
It is hypothesized that the introduction of decision aids will improve the quality of treatment decisions regarding fracture by leading to bisphosphonate start eliciting patient involvment in the decision making process. It is hypothesized that patients will become more involved in the decision making process and decisions will be more consistent with patients' lifestyles--decision aids (DAs) will lead to bisphosphonate start and adherence in patients at high risk of fracture and to patients stopping medication or not starting in patients at low risk.… Continue reading
Novel Methods for Risk Communication Among Patients with Low Numeracy Skills--Application in Prostate Cancer Decision Support
January 31, 2008
This study is fielding a series of 50 structured interviews in our practice based research network of four clinics serving large populations of African American men with low literacy and low numeracy skills.… Continue reading
Patient Use of Health Outcomes Calculators Based Upon the Results of Complex Longitudinal Clinical Trials to Enhance Decision Making: The Spine Patient
January 30, 2008
Initial plans for a new calculator were developed. Following, an expert panel reviewed the plans and provided detailed recommendations for the calculator design. Feedback was also solicited from clinicians, potential users in one-on-one sessions and a small focus group. … Continue reading
What is the Role of Decision Support Software in the Decision Making Process for Men with Early Stage Prostate Cancer? A Mixed-Methods Approach to Understanding Personal Characteristics that Influence Use and the Decision Making Process
September 30, 2007
Specific CAPtDA components were highly utilized while other components were rarely used. The “Men’s Stories,” which included actual men’s stories about diagnoses, treatment decisions and challenges, was viewed by 77% of the men. Results showed that the percentage of men who viewed “Men’s Stories” spent almost half of their time (46%) here.… Continue reading
Development and Evaluation of an Intervention to Engage Inter-Professional Health Care Teams, Patients and Families in Shared Decision Making about the Level of Care in the Intensive Care Unit
September 30, 2007
The research aims to develop and evaluate an intervention to engage interprofessional health care teams, patients and families in shared decision making about the level of care in the Intensive Care Unit.… Continue reading
Treatment Decision Making in Localized Prostate Cancer: The Role of Functional Health Literacy and Cancer-Related Distress
May 15, 2007
The proposed study will examine predictors of informed decision making in men considering treatment for localized prostate cancer. Specifically, we will evaluate the ability of functional health literacy and cancer-related anxiety to predict indices of effective decision making in a population of veterans with prostate cancer. Measure of prostate cancer knowledge, decisional conflict, and eventual treatment choice will be used to assess these three components of effective decisions.… Continue reading
Decision Making About Colonoscopy Use among Survivors of Colorectal Cancer
May 15, 2007
This project addresses the risk perceptions, surveillance intentions and surveillance behaviors of CRC survivors. Researchers found that risk perception varies widely but that geographic region is a major predictor and that colonoscopy use may reflect better access to care. The Cancer Care Outcomes Research and Surveillance (CanCORS) study is a national multi-site cohort study of CRC patients. … Continue reading
Quality of Decision Making Communication and Outcomes of Care for African Americans with Depression Study
January 31, 2007
This study will increase understanding of the role of SDM in improving outcomes for patients with depression and in reducing racial disparities in mental health care.… Continue reading
An Assessment of Shared Decision Aids in Latinas with Breast Cancer
January 30, 2007
Our primary hypothesis is that participants who utilize the “Early Breast Cancer: Chemotherapy and Hormone Therapy are They Right for You?” (translated) DA in shared decision- making will experience more value-congruent decisions than the control group. The specific aims of the proposed work are to: 1) determine the utility of the DA in decision-making; 2) evaluate satisfaction with the DA; and 3) assess and compare the participant’s satisfaction with and value-congruence of her decision after exposure to the DA with those of the control group.… Continue reading
Activating Seniors to Improve Chronic Disease Care
January 30, 2007
Chronic conditions are the primary sources of disease and disability among older Americans. Better patient self-management for chronic conditions has the potential to improve patient quality of life and reduce associated health care costs. Many older Americans, who are often hard to reach with health interventions, use publicly funded multi-purpose senior centers to access social services and seek social support.… Continue reading
A Randomized Controlled Trial of Consumers Asking Questions to Prompt Clinicians to Discuss and Apply Evidence to their Care
January 30, 2007
To test a brief consumer-led intervention consisting of three generic “Consumer Questions” designed to encourage doctors to discuss evidence related to treatment options with their patients. They are: 1) “What are my options?” 2) “What are the possible outcomes of those options?”and 3) “How likely is each of the outcomes to occur?”… Continue reading
The National Survey of Medical Decisions (The DECISIONS Study)
January 30, 2007
The National Survey of Medical Decisions was designed to collect nationally representative data from adults age 40 and above on a variety of medical decisions from the patient perspective, using a random digit dial (RDD) telephone survey. … Continue reading
History of Decision-Making in Cardiac Revascularization
January 30, 2007
Research seeks to look at the relationship between disease models and therapeutic practice and examine the history of the recognition that CABG and, to a lesser extent, PCI could cause severe neuro-cognitive side effects.… Continue reading
Using Video Images of Dementia in Advance Care Planning
September 30, 2006
Researchers are exploring the difference in elderly patients' preferences for the level of medical care in advanced dementia and their health literacy when given a video as opposed to a verbal narrative on dementia. They will evaluate whether videos of other diseases can serve as a tool to assist clinicians in discussions of complex information with patients with low health literacy. Researchers propose to conduct a randomized trial studying ACP for elderly subjects using a video depiction of a patient with dementia compared to the traditional verbal narrative.… Continue reading
Determinants of HPV Testing in an Undeserved Population (The Effect of Direct-to-Consumer Advertising on Clinical Decision Quality: A Two-Part Analysis of a Cervical Cancer Screening Test Campaign)
May 15, 2006
Study found HPV test use increased over study period and appropriate use doubled to 60%-75% of total use.… Continue reading
Shared Decision Making in Hispanics with Muscoloskeletal Disorders: A Qualitative Study
January 31, 2006
Our findings suggest striking commonalities across the clinical conditions (back vs. knee), sociodemographic strata (high vs. low vulnerability) and ethnic groups (Hispanics vs. non-Hispanics whites). Experienced across anatomic, socioeconomic and ethnic strata, pain and functional limitation are the central experiences of these musculoskeletal disorders.… Continue reading
Impact of Health Literacy on Outcomes and Effectiveness of Shared Decision-Making® Programs in Patients with Chronic Diseases
January 31, 2005
In conjunction with study aims, researchers hypothesize, in patients with coronary heart disease, a video version of a shared decision making program will result in greater knowledge about CAD, its associated risks and life style changes when compared to the use of a booklet alone. … Continue reading
Shared Decision Making for People with Severe and Persistent Mental Illness
January 30, 2005
The proposed research will assess the decision making needs of people with SMI and their clinicians, and create a model decision aid that meets the local needs of clients and clinicians. This study will contribute to the development of interventions for persons with SMI by: 1) identifying decision support needs gaps; 2) identifying moderating variables of needs gaps; and 3) building and assessing the feasibility of decision aids to fill decision support needs gaps in this population.… Continue reading
