Special Populations

Effective implementation of shared decision making can improve the informed consent process and potentially bridge health disparities among special populations.

Our Library

Below you will find samples of our most recent acquisitions in Special Populations, grouped by resource type.

Shared Decision-Making® Program Research

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Using Decision Aids in Community-Based Primary Care: A Theory-driven Evaluation with Ethically Diverse Patients

Frosch DL, Légaré F, Mangione C. Using decision aids in community-based primary care: A theory-driven evaluation with ethnically diverse patients. Patient Educ Couns. 2008;73(3):490-6. Read the abstract.  Continue reading
Posted in Patient Decision Aids, Special Populations | Tagged decision aids, patients, primary care, Shared Decision-Making® programs Permalink

Featured Shared Decision Making Publications

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A Multicentre Randomised Controlled Trial Assessing the Costs and Benefits of Using Structured Information and Analysis of Women's Preferences in the Management of Menorrhagia

Objectives To develop decision aids to provide evidence-based information and formal preference elicitation for women with menorrhagia; and to evaluate their effects on patient outcomes, patient management and cost effectiveness.…  Continue reading
Posted in Cost, Patient Preferences, Special Populations | Tagged Angela Coulter, BMJ, cost-effective medical care, evidence-based medicine, menorrhagia, patient outcomes, women Permalink

Development of Instruments to Measure the Quality of Breast Cancer Treatment Decisions

Women with early-stage breast cancer face a multitude of decisions. The quality of a decision can be measured by the extent to which the treatment reflects what is most important to an informed patient. Reliable and valid measures of patients' knowledge and their goals and concerns related to breast cancer treatments are needed to assess the decision quality.…  Continue reading
Posted in Decision Quality, Special Populations | Tagged breast cancer, breast cancer treatment, breast cancer treatment decisions, Carrie Levin, Karen Sepucha, Michael J. Barry Permalink
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Informed Medical Decisions Foundation Funded Research

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Understanding the Experience of Early Stage Breast Cancer Diagnosis and Surgical Treatment among Jordanian Women

To understand the experience of being diagnosed with and undergoing surgical treatment for early stage breast cancer among Jordanian women. Study specific aims are to: 1) gain an understanding of women’s knowledge of breast cancer treatment and how their treatment awareness has been informed; 2) explore women’s awareness of their right to be informed and involved in their own medical care; 3) explore women’s preferences for involvement; and 4) identify the extent to which these women perceived that they had surgical treatment options.…  Continue reading
Posted in Decision Quality, George Bennett Grants, Investigator-Initiated Research, Patient Involvement, Patient Preferences, SDM Implementation, Special Populations | Tagged breast cancer treatment, early stage breast cancer Permalink

Video Images of Disease for Ethical Outcomes: The VIDEO STUDY

In previous work, the Principal Investigator successfully demonstrated that a video of the goals of care in advanced cancer improved understanding and decision making in a small group of patients with advanced brain cancer. The video presents end-of-life options within the framework of the patient’s primary goals of care (i.e., life prolongation, maintenance of function, or comfort care). Building on this earlier work, the main goal of this study is to conduct a randomized controlled trial of the video decision support tool (vs. a verbal narrative) to test the hypothesis that the video improves the decision-making process among persons with advanced cancer. …  Continue reading
Posted in Decision Aid Components, Investigator-Initiated Grants, Investigator-Initiated Research, Special Populations | Tagged decision support, decision-making, end of life, medical ethics, The VIDEO STUDY Permalink
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