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All Informed Medical Decisions Foundation Funded Research
Enhancing Comprehension of Graphically Presented Medical Data: Designs to Help People with Low Graph Literacy
September 20, 2012
In order to make informed medical decisions, patients need to understand information about risks, benefits and drawbacks of different treatments. However, research on health literacy and medical decision making has shown that patients in different cultures have severe problems grasping a host of numerical concepts that are prerequisites for understanding health-relevant statistical information. Graphical displays -- including line plots, bar charts or icon arrays -- often facilitate the communication of numerical information, and can help overcome some of these difficulties. Continue reading
Effects of Decision Ambiguity on Shared Medical Decision Making
September 30, 2011
To evaluate the impact of ambiguity on shared medical decision making using scenarios on future medicine and unconventional medicine. To develop and test a decision aid tool to help patients and physicians understand ambiguity and to encourage a shared medical decision making process that is applicable to ambiguous decisions that involve future medicine and unconventional medicine. Continue reading
Barriers and Facilitators to Implementing Decision Boxes in Primary Healthcare Interdisciplinary Teams to Facilitate Shared Decision Making
September 30, 2011
Our primary aim is to explore the barriers and facilitators influencing primary healthcare interdisciplinary teams' use of decision boxes in clinical practice. Continue reading
Overdiagnosis in Screening Mammography: Examination of Women's Attitudes and Responses to Information about Overdiagnosis
May 15, 2011
The overall purpose of this research is to contribute to improving communication with the community about screening mammography. The research involves developing and evaluating educational materials and strategies to meet the important ethical objective of providing balanced information about screening outcomes in order to support screening decisions. Continue reading
Facilitating Shared Decision Making in Lynch Syndrome: Notification of Relatives of Hereditary
May 15, 2011
At the foundation of genetic counseling is shared decision making. During the decision to undergo genetic testing, familial implications of results and notification are often not discussed extensively due to time constraints. Continue reading
Decision Making on the Go: A Mobile App Interpretation of a Prostate Cancer Decision Aid
May 15, 2011
The objectives are to 1) Survey mobile use around health issues in men newly eligible for prostate cancer screening, and 2) to develop a mobile PSA decision aid prototype based on the previously validated internet-based Prosdex decision support intervention (DESI) in preparation for subsequent field testing. Continue reading
Using Video-Enhanced, Internet-Based Vignette Experiments to Study Patient Decisions Regarding Knee Replacement for Osteoarthritis
January 31, 2011
Our substantive research aim is to examine how patients make difficult decisions about surgical treatment for knee osteoarthritis, a serious chronic condition affecting many middle aged and old people. We will be concerned specifically with the effects of: 1) level of pain; 2) opportunity costs associated with treatment; 3) physician recommendations; 4) supplementary outcome projections; and 5) testimonials of other patients on patient decisions. Continue reading
Using Decision Analytic Modeling to Guide the ACCP Guideline Development Process for Antithrombotic Therapy in Atrial Fibrillation
January 31, 2011
We propose integrating the development of decision analytic (DA) models into the process organized by the ACCP for guideline development and dissemination of antithrombotic therapy in patients with atrial fibrillation (AF). Continue reading
How do Patients Decide about Angioplasty for Chronic Stable Angina? A Content Analysis of Patient-Physician Discussions
January 31, 2011
The objective of this study is to evaluate the content and character of PCI discussions between cardiologists and patients to determine how often recommended elements of informed decision making are included, to understand why many patients perceive a mortality benefit and to evaluate the effect of informed decision making on patients’ decisions. Continue reading
Cutting Through the Misguided Conventional Wisdom about Healthcare: How Can We Help the Public Believe Medical Evidence
January 31, 2011
This study will investigate public perceptions of breast, prostate and colorectal cancer screening by contrasting popular media messages with evidence based information. Continue reading
The Impact of Decision Aids about Prostate Cancer Screening for Men Accessing Healthcare in a Community Setting: DVD vs. Web
January 30, 2011
The overarching goal of this study is to compare the impact on knowledge and acceptability of a prostate screening decision aid delivered via either DVD or Web format. We have considerable experience and expertise in developing and comparing format-related differences in impact and uptake of patient education programs, with a particular interest in incorporating literacy levels into our research. Continue reading
Posted in Decision Aid Components, Directed Research
Tagged decision aids, prostate cancer screening, web-based
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Evaluation of DVD and Internet Decision Aids for Hip and Knee Osteoarthritis: Focus on Health Literacy
January 30, 2011
This study will advance the evidence base regarding best methods for facilitating informed decisions among patients with knee and hip osteoarthritis (OA) by comparing DVD and Crossroads online formats of decision aids (DAs) for these conditions. Continue reading
A Randomized Mixed-Methods Cross-Over Study to Compare the Performance of Traditional DVD and Web-Based Patient Decision Support
January 30, 2011
To date, few randomized trials have directly compared the same Decision Support Interventions (DESIs) delivered through different media. While earlier efforts focused principally on booklets and videos, more recently the majority of DESI development efforts have focused on creating interactive electronic tools that can be delivered through the internet. However, very little is known about how web-based DESIs perform in comparison to more traditional video DESIs, such as those developed and distributed by the Informed Medical Decisions Foundation. Continue reading
Posted in Decision Aid Components, Directed Research
Tagged decision support, DESis, PAMF, web-based
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Understanding the Experience of Early Stage Breast Cancer Diagnosis and Surgical Treatment among Jordanian Women
September 30, 2010
To understand the experience of being diagnosed with and undergoing surgical treatment for early stage breast cancer among Jordanian women. Study specific aims are to: 1) gain an understanding of women’s knowledge of breast cancer treatment and how their treatment awareness has been informed; 2) explore women’s awareness of their right to be informed and involved in their own medical care; 3) explore women’s preferences for involvement; and 4) identify the extent to which these women perceived that they had surgical treatment options. Continue reading
A National Survey of Urologists and Radiation Oncologists on Prostate Cancer and Shared Decision-Making
September 30, 2010
Here, we propose to fill this important knowledge gap regarding recent trends in both the evidence in prostate cancer and the role of shared decision-making tools in specialty practice that will form the basis for future shared decision-making implementation research. Continue reading
The Effect of a Decision Aid on the Quality of Colon Cancer Screening
September 30, 2010
The primary goal of this study is to determine whether the decision aid increases patient knowledge about colon cancer screening. The secondary goal of the study is to assess the degree to which use of the decision aid affects participants’ values and actual choice of particular screening tests. Continue reading
Intuitive and Deliberative Processing in Patient Decision Aids
September 30, 2010
The present research will attempt to shed light on this issue by asking participants to read a prostate cancer decision aid and then engage in either a deliberative or intuitive decision making strategy prior to making a treatment decision. Decision quality will be measured using value-decision correspondence, feelings about the decision (e.g., confidence) and cancer-related anxiety. Continue reading
Video Images of Disease for Ethical Outcomes: The VIDEO STUDY
January 31, 2010
In previous work, the Principal Investigator successfully demonstrated that a video of the goals of care in advanced cancer improved understanding and decision making in a small group of patients with advanced brain cancer. The video presents end-of-life options within the framework of the patient’s primary goals of care (i.e., life prolongation, maintenance of function, or comfort care). Building on this earlier work, the main goal of this study is to conduct a randomized controlled trial of the video decision support tool (vs. a verbal narrative) to test the hypothesis that the video improves the decision-making process among persons with advanced cancer. Continue reading
Prostate Education Project ("PEP Talk"): Cutting through the Uncertainty of Prostate Cancer for Black Men Using Barbershop Outreach
January 31, 2010
The goal of this research is to provide pilot data aimed at a rigorous randomized clinical trial in assessing the effectiveness of barbershop-based health promotion in order to improve the quality of decisions made by AA men about PrCA screening. Continue reading
