Inspired by Dr. Jeff Belkora's work with shared decision making at the UCSF Breast Care Center, Dr. Belinda Hacking brought a similar model to Edinburgh. Macmillan Cancer Support provided Belinda and her team with a generous grant for a pilot study integrating decision support into medical care for breast, prostate, brain and colorectal cancer. Preliminary results have shown that patients believed the intervention had a positive effect on their experience.
Nine out of 10 Medicare patients who received a stent procedure for coronary disease report that their physicians did not present them with the non-invasive alternative of managing their condition with medication, according to the results of a study published online today by the Journal of General Internal Medicine. Floyd J. Fowler Jr., senior scientific advisor at the Informed Medical Decisions Foundation, was the study's principal investigator.
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Tagged coronary artery disease, coronary artery disease treatment, decision support, heart disease, patient-centered care, patients, prostate cancer, prostate cancer treatment, prostate surgery, shared decision making, stenting, stents
MAGIC, based in the UK, explores how shared decision making can be implemented in routine medical practice. Through awareness campaigns, MAGIC is educating patients and providers about decision-support tools and the effectiveness of shared decision making.
There has been increasing interest in the use of "decision aids", defined as adjuncts to the discussions clinicians have with patients during deliberations about decisions: these aids provide information about options and help clarify personal values. These adjuncts range from leaflets through face to face methods such as coaching or counselling to interactive multimedia websites. To describe this generic family of clinician-patient interventions we will use the term decision support technologies (DSTs), corresponding with the internationally recognised need to assess the impact of "health technologies."
Objective To develop a set of quality criteria for patient decision support technologies (decision aids). Design and setting Two stage web based Delphi process using online rating process to enable international collaboration.
One of our primary goals at the Informed Medical Decisions Foundation is to strive for balance and fairness when helping patients understand medical decisions. At the core of our organization is the conviction that the best medical decisions are made when patients are well informed and active participants in the decision making process. A balanced presentation gives patients the best chance to work in partnership with their providers and make the decision that will serve them best.
To date, few randomized trials have directly compared the same Decision Support Interventions (DESIs) delivered through different media. While earlier efforts focused principally on booklets and videos, more recently the majority of DESI development efforts have focused on creating interactive electronic tools that can be delivered through the internet. However, very little is known about how web-based DESIs perform in comparison to more traditional video DESIs, such as those developed and distributed by the Informed Medical Decisions Foundation.
The International Patient Decision Aid Standards (IPDAS) Collaboration has led to the development of a quality checklist and, more recently, an instrument to assess the quality of decision support interventions. We recognize that further work is required to examine the relationships between International Patient Decision Aid Standards instrument (IPDASi) scores and the outcomes achieved in clinical trials.
The University of California San Francisco (UCSF) Breast Care Center (BCC) is a high volume specialty clinic providing multi-disciplinary care in a National Cancer Institute-designated Comprehensive Cancer Center. Eight medical oncologists and four surgeons, among dozens of specialists, providers and staff conduct more than 1,000 consultations annually, caring for more than 600 newly diagnosed patients each year. The Breast Care Center at UCSF became a Foundation funded specialty care demonstration site in 2005 in order to offer their patients a unique type of decision support and guidance along their journey.