Tag Archives: end of life

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Iowa and Wales United through Shared Decision Making

A Passion for Shared Decision Making Unites Nurses Living 4,000 Miles Apart

Any outsider listening to the phone conversation that occurred this summer between Kelly Taylor, director of quality improvement at Mercy Clinics, Inc. in Des Moines, Iowa and Jane Price, the lead nurse for patient experience at Aneurin Bevan Health Board in Gwent, Wales, would have though they were listening to old friends exchanging stories about a shared history of palliative care nursing. Although they had never met in person, this first conversation between the two was a seamless hour long exchange of personal anecdotes, lessons learned from their work, and hope for the future of health care for those suffering from terminal disease. Continue reading
Posted in | Tagged Dartmouth-Hitchcock Medical Center, death and dying, end of life, Mercy Clinics, patient-centered care, patients, shared decision making | Permalink
Ira Byock, MD

Author Spotlight: Ira Byock, MD

“We need to move past our hesitation in talking about dying and accept the fact that we are not immortal,” says Dr. Ira Byock, author of The Best Care Possible and director of palliative medicine at Dartmouth-Hitchcock Medical Center. “Once we accept that fact, we can focus on how to provide the best care possible for those who are incurable.” For more than 30 years, Ira has worked with patients and their families to make difficult decisions about care. “The fundamental nature of illness is personal,” says Ira. The palliative care approach lends itself well to improving the quality of life and personal experience of serious illness, including the dying process. Continue reading
Posted in | Tagged death and dying, end of life, Ira Byock, medical decisions, palliative care, shared decision making | Permalink

Featured Shared Decision Making Publications

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Use of Video to Facilitate End-of-Life Discussions with Patients with Cancer

This article describes a study that found that patients with cancer who viewed a video of various goals-of-care options, in addition to a verbal description were more likely to prefer comfort measures and avoid CPR. The study found that these patients were also more knowledgeable regarding advanced care treatment options and felt more certain about their decision compared to patients only hearing a verbal narrative. This article differs from some other studies regarding decision aids since other uses of video decision support tools have focused on helping people make treatment or screening decisions, whereas this video was used to initiate end-of-life discussions. Continue reading
Posted in | Tagged cancer, decision aids, end of life, Michael J. Barry, shared decision making | Permalink

In The News

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[ScienceLine] Visualizing the very end: A group of doctors advocates use of videos in advance care planning

"For the better part of the last decade, Volandes, who studied filmmaking during medical school, has been producing short videos to inform decision making about end-of-life care. With funding from the federal government and the [Informed Medical Decisions Foundation], Volandes and other doctors have tested the videos in controlled studies, and they have been integrated into standard practice at 35 large health care organizations in the U.S."
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Tagged advance care planning, Angelo Volandes, cancer, decision aids, end of life, informed decisions, Medicare, shared decision making | Permalink

Informed Medical Decisions Foundation Funded Research

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Development and Evaluation of an Intervention to Engage Inter-Professional Health Care Teams, Patients and Families in Shared Decision Making about the Level of Care in the Intensive Care Unit

The research aims to develop and evaluate an intervention to engage interprofessional health care teams, patients and families in shared decision making about the level of care in the Intensive Care Unit. Continue reading
Posted in | Tagged decision aids, end of life, ICU, shared decision making | Permalink

Efficacy of a Training Intervention on the Quality of Case Managers Nurses Decision Support for Patients Deciding about the Place of Care at the End-of-Life: A Randomized Control Study & Efficacy of an Evidence Informed, Theory-based Training Intervention on the Quality of Clinicians' Decision Support for Patients Deciding about Place of End-of-Life Care: A Randomized Control Trial

To evaluate the efficacy of a theory driven, framework-based, multifaceted training intervention designed to enhance the quality of nurses decision support skills regarding end-of-life place of care for adults with terminal cancer. This study aims to determine whether the quality of nurses decision support can be improved with a theory-based skills-building intervention. Continue reading
Posted in | Tagged decision support, end of life, terminal cancer | Permalink