Inspired by Dr. Jeff Belkora's work with shared decision making at the UCSF Breast Care Center, Dr. Belinda Hacking brought a similar model to Edinburgh. Macmillan Cancer Support provided Belinda and her team with a generous grant for a pilot study integrating decision support into medical care for breast, prostate, brain and colorectal cancer. Preliminary results have shown that patients believed the intervention had a positive effect on their experience.
"What [we need] is a radical change in the way medicine is practiced," says Angela Coulter, director of global initiatives at the Informed Medical Decisions Foundation and author of Engaging Patients in Healthcare, her latest book. Angela's book is a comprehensive, evidence-based textbook that explores the ways in which patient engagement can improve overall health care.
In response to the National Institute for Health and Clinical Excellence's (NICE) guidelines on patient experience quality standards, the authors aim to provide an overview of the guidance. This editorial discusses key points of the NICE guidelines, as well as the benefits of implementation and the challenges that remain.
Health technology assessment (HTA) involves values and judgements, but there have been few attempts to seek the views of members of the public or to ensure that they have access to the results. Patients and citizens can make an important contribution to HTA by determining priorities for assessment, designing and conducting assessments and appraisals, receiving and using the findings, and engaging in debates about policy priorities and rationing. Those responsible for HTA should make greater efforts to involve the public and ensure that the findings are accessible to patients for use when making treatment choices.
Michael J. Barry, president of the Informed Medical Decisions Foundation, appeared in this CBS Evening News segment on the new
Our primary aim is to explore the barriers and facilitators influencing primary healthcare interdisciplinary teams' use of decision boxes in clinical practice.
This study will investigate public perceptions of breast, prostate and colorectal cancer screening by contrasting popular media messages with evidence based information.
A member of Lakeview Health System, Stillwater Medical Group is a multi-specialty group practice serving Minnesota’s beautiful St. Croix Valley and western Wisconsin. Stillwater Medical Group seeks to provide patient-centered and compassionate care to the tens of thousands of patients the group encounters every year. With the goal of system-wide implementation of shared decision making for a wide variety of conditions, Stillwater Medical Group became a Foundation funded demonstration site in 2009. Stillwater Medical Group is guided by the needs of the patient as they work to create patient-provider partnerships that are effective and personal. Health care providers guide patients in shared decision making to help align treatment options with what is most important to patients.
MaineHealth is a nonprofit, integrated health system providing a range of care from prevention and health maintenance through tertiary services, rehabilitation, chronic care and long-term care. The health system serves three quarters of the state’s population. MaineHealth became a Foundation funded demonstration site in 2009 in order to better achieve its goal of achieving excellence in clinical care, patient safety, education and research.
Medicine is not one-size-fits-all. In fact, each patient's condition, situation and preferences are different. To help empower people to be fully informed and active participants in their health care, the Foundation has developed a Shared Decision-Making® program called Getting the Healthcare that's Right for You.