Tag Archives: patient participation

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Fear of Being Labeled "Difficult" May Keep Patients from Participating in Shared Decision Making

A new study published in the May issue of Health Affairs finds that some patients are concerned about being labeled “difficult” if they ask too many questions or disagree with a recommendation from their physician. “We found that patients want to participate in making decisions with their physicians, but feel vulnerable and worried that they might be perceived as too assertive, resulting in lower quality care in the future,” says Dr. Dominick Frosch, lead author of the study. Continue reading
Posted in Current News | Tagged Health Affairs, Palo Alto Medical Foundation Research Institute, patient participation, shared decision making | Permalink

Featured Shared Decision Making Publications

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Where are the Patients in Decision-making about Their Own Care?

Occasionally, all citizens have to make important health decisions that affect health outcomes. Strategies to support patient education and engagement should therefore be a fundamental plank of health policy. Also, patients can play an important role in understanding the causes of illness, protecting their health and taking appropriate action, choosing appropriate treatments for acute episodes of ill health, and managing chronic illness. These roles must be recognized and supported. Continue reading
Posted in Health Care Policy, Patient Involvement, SDM Implementation | Tagged Angela Coulter, decision-making, health policy, patient participation, shared decision making, World Health Organization | Permalink

When Should You Involve Patients in Treatment Decisions?

There is much evidence that engaging patients in treatment decisions and supporting their efforts at self-care can lead to beneficial outcomes. Patients who are active participants in a shared decision-making process have a better knowledge of treatment options and more realistic perceptions of likely treatment effects. The resulting treatment choices are more likely to concur with their preferences and attitudes to risk. Actively engaged patients are also more likely to adhere to treatment recommendations, and less likely to select expensive procedures. However, patients' desires to play and active role in decision making varies, and, according to Cox et al., GPs are not very good at predicting what role patients want to play. What should be done about this problem? Continue reading
Posted in Patient Involvement | Tagged Angela Coulter, decision-making, general practitioners, health care, patient engagement, patient participation | Permalink

Informed Medical Decisions Foundation Funded Research

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Impact of a Decision Aid on Patient Participation in Decision Making and Resource Use in Low Risk Chest Pain Patients: A Randomized Trial

Clinicians in the U.S. may miss two of every 100 patients with acute myocardial infarction or unstable angina (i.e., acute coronary syndromes, or ACS) presenting to the emergency department (ED) even after considering the history, physical examination, initial electrocardiogram and cardiac biomarkers (troponin levels). Continue reading
Posted in Decision Aid Effectiveness, Investigator-Initiated Grants, Investigator-Initiated Research, Patient Involvement | Tagged angina, chest pain, decision aids, decision-making, patient participation | Permalink

Patient Participation in Decision Making in Medication Adherence in Osteoporosis

It is hypothesized that the introduction of decision aids will improve the quality of treatment decisions regarding fracture by leading to bisphosphonate start eliciting patient involvment in the decision making process. It is hypothesized that patients will become more involved in the decision making process and decisions will be more consistent with patients' lifestyles--decision aids (DAs) will lead to bisphosphonate start and adherence in patients at high risk of fracture and to patients stopping medication or not starting in patients at low risk. Continue reading
Posted in Investigator-Initiated Grants, Investigator-Initiated Research, Patient Involvement, SDM Implementation | Tagged bisphosphonate, decision-making, osteoporosis, patient engagement, patient participation | Permalink